Know AML: Blood Cancer Awareness Month – September 2023

Know AML is the first global education and awareness initiative that provides patients and caregivers with the information, resources, and support they need to deal with acute myeloid leukemia (AML). AML, a rare aggressive cancer of the blood and bone marrow, is the most common form of acute leukemia in adults. Over the years, Know AML has run robust campaigns in September to raise awareness of AML during Blood Cancer Awareness Month (BCAM).

Throughout the year, Know AML has been successful in delivering several cornerstone projects: our AML World Awareness Day campaign on April 21; our Global Network and Ambassador meeting in May; the interactive ambassador workshop for Ambassadors in July – and many more projects to come.

In September 2023, we will continue to campaign, with help from our global network and community, to raise awareness of access to mental health and wellbeing support, its benefits, and why it is important for people with AML and their caregivers to #TalkAML with family and friends. More information, details on how to get involved, and resources can be found here.

“As a Know-AML Patient Ambassador for six years I have personally seen the tremendous change Know-AML has made for families receiving this challenging diagnosis. Medical advances have accelerated during that time, clinicians are more aware of AML specific diagnostic details and personalized medicines have been announced. But it is only with the publication of this news, and the information Know-AML has created for patients and care-givers, that so many patients and families have been helped by these helpful videos and online publications”.

– Ralph Hills, Know AML Co-chair and patient, US

Everyone can make a difference during BCAM by downloading, editing, and sharing our translatable assets, following the Know AML social channels, and using the hashtags #KnowAML and #TalkAML, and watching and sharing our video stories from people with AML and HCPs as they #TalkAML. You can get involved both online and offline and encourage others to get involved too!

Please visit the Know AML website for more information on the TalkAML campaign, as well as resources and information to support patients and caregivers in the AML community worldwide.

If you have any questions or would like more information, please get in touch via our social channels or via email: ses_knowaml@scientificeducationsupport.com

Further information

Know AML has a dedicated and highly experienced global ambassador group who meet regularly to steer and guide the initiative. This ambassador group consists of patients and caregivers, patient advocates, healthcare professionals, and industry representatives. Their responsibility is to propose awareness initiatives, provide concepts for support and education resources, share their experiences and learnings from advocacy heritage, and endorse materials before circulation among the AML community.

Know AML is brought to you by Scientific Education Support (SES) in collaboration with the Acute Leukaemia Advocates Network (ALAN). For more information, please visit the SES website. Know AML owes thanks to its supporters: Bristol Myers Squibb and ABBVIE. For more information on Know AML, please visit: https://know-aml.com/. For all press and media enquiries, please contact: ses_knowaml@scientificeducationsupport.com

Twitter: @Know_AML #KnowAML #TalkAML

Facebook: @KnowAML

Instagram: @KnowAML

LinkedIn: Know AML

Ambassadors:

Agnieszka Wierzbowska – Co-Chair and Physician, University of Lodz, Poland

Amanda Shlosberg – Patient Advocate, CancerCare, United States of America

Claire Saxton – Patient Advocate, Cancer Support Community, United States of America

Lise-lott Eriksson – Patient Advocate, Blodcancerförbundet, Sweden

Rita Christensen – Patient Advocate, LyLe, Denmark

Stacey Koleszar – Patient Advocate, Leukemia & Lymphoma Society, United States of America

Tracey Iraca – Patient Advocate, MDS Foundation, United States of America

Zack Pemberton-Whiteley – Patient Advocate, Acute Leukemia Advocates Network, United Kingdom

Anna Mamwell – Patient, United Kingdom

Lizzie Dean – Patient, United Kingdom

Ralph Hills – Patient, United States of America

Charles Craddock – Physician, Queen Elizabeth Hospital Birmingham, United Kingdom

Gail J. Roboz – Physician, Weill Cornell Medicine, United States of America

Isolda Fernandez – Physician, FUNDALEU, Argentina

Erik Aerts – Specialist Nurse, HNHCP, Switzerland

Global Network:

Cancer Support Community, North America

Slovenian Lymphoma & Leukemia Patient Association, Slovenia

Philippines Acute Leukemia and Lymphoma Network, Philippines

Aplastic Anemia & Myelodysplasia Association of Canada, Canada

Thai Blood Cancer Supporter, Thailand

Fundación Colombiana de Leucemia y Linfoma, Colombia

Hematoonkologia, Poland

Associação de Apoio aos Doentes com Leucemia e Linfoma, Portugal

Leukaemia Care, United Kingdom

Flute of Light, Israel

Asociación Leucemia Mieloide de Argentina, Argentina

Aplastic Anemia & MDS International Foundation, North America

Lyle Foreningen, Denmark

Blodkreftforeningen, Norway

LHRM-MDS Patienten-interessen Gemeinschaft, Germany

Leukaemia & Blood Cancer New Zealand (LBC), New Zealand

Leukemia & Lymphoma Society, North America

Associazione Italiana Contro le Leucemie – Linfomi e Mieloma ONLUS, Italy

Cure Leukaemia, United Kingdom

Polska Koalicja Pacjentów Onkologicznych, Poland

Lymphoma Coalition, Global

Public Organization for Patients with Hematological Diseases, Russia

Patient Empowerment Network, North America

Hematon, Netherlands

MDS Foundation, North America

The White Cell Foundation, Nigeria

Taiwan Bone Marrow Transplantation Association, Taiwan

CancerCare, North America

Korea Blood Disease & Cancer Association (KBDCA), Korea

Asociația Română împotriva Leucemiei (ARIL), Romania

HealthTree Foundation, North America

Blodcancerförbundet, Sweden

Leukämiehilfe RHEIN-MAIN E.V., Germany

Blood Cancer Society Nepal, Nepal

Abrale, Brazil

HematologickyPacient, Slovakia

Association of Cancer Patients in Finland, Finland

Blood & Marrow Transplant Information Network, North America

RunX1 Research Program, Global

Portuguese Leukaemia and Lymphoma Association, Portugal

Life With Challenges, Macedonia

The Myeloma, Lymphoma & Leukaemia Foundation of Barbados, Barbados

K.E.F.I of Athens, Greece

Hrvatska udruga leukemija I limfomi (HULL), Croatia

Blood Cancer UK, United Kingdom

Kraujas, Lithuania

Irish Cancer Society, Ireland

Diagnóza Leukemie, Czech Republic

HEMA, North Macedonia

ACTL, United Kingdom