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Know AML: Blood Cancer Awareness Month – September 2023

Friday 18 August, 2023

Know AML
is the first global education and awareness initiative that provides patients and caregivers with the information, resources, and support they need to deal with acute myeloid leukemia (AML). AML, a rare aggressive cancer of the blood and bone marrow, is the most common form of acute leukemia in adults. Over the years, Know AML has run robust campaigns in September to raise awareness of AML during Blood Cancer Awareness Month (BCAM).


Throughout the year, Know AML has been successful in delivering several cornerstone projects: our AML World Awareness Day campaign on April 21; our Global Network and Ambassador meeting in May; the interactive ambassador workshop for Ambassadors in July – and many more projects to come.


In September 2023, we will continue to campaign, with help from our global network and community, to raise awareness of access to mental health and wellbeing support, its benefits, and why it is important for people with AML and their caregivers to #TalkAML with family and friends. More information, details on how to get involved, and resources can be found here.


As a Know-AML Patient Ambassador for six years I have personally seen the tremendous change Know-AML has made for families receiving this challenging diagnosis. Medical advances have accelerated during that time, clinicians are more aware of AML specific diagnostic details and personalized medicines have been announced. But it is only with the publication of this news, and the information Know-AML has created for patients and care-givers, that so many patients and families have been helped by these helpful videos and online publications”.


– Ralph Hills, Know AML Co-chair and patient, US


Everyone can make a difference during BCAM by downloading, editing, and sharing our translatable assetsfollowing the Know AML social channels, and using the hashtags #KnowAML and #TalkAML, and watching and sharing our video stories from people with AML and HCPs as they #TalkAML. You can get involved both online and offline and encourage others to get involved too!


Please visit the Know AML website
for more information on the TalkAML campaign, as well as resources and information to support patients and caregivers in the AML community worldwide.


If you have any questions or would like more information, please get in touch via our social channels or via email: ses_knowaml@scientificeducationsupport.com


Further information


Know AML has a dedicated and highly experienced global ambassador group who meet regularly to steer and guide the initiative. This ambassador group consists of patients and caregivers, patient advocates, healthcare professionals, and industry representatives. Their responsibility is to propose awareness initiatives, provide concepts for support and education resources, share their experiences and learnings from advocacy heritage, and endorse materials before circulation among the AML community.


Know AML is brought to you by Scientific Education Support (SES) in collaboration with the Acute Leukaemia Advocates Network (ALAN).
For more information, please visit the SES website. Know AML owes thanks to its supporters: Bristol Myers Squibb
and ABBVIE. For more information on Know AML, please visit: https://know-aml.com/. For all press and media enquiries, please contact: ses_knowaml@scientificeducationsupport.com


Twitter: @Know_AML #KnowAML #TalkAML


Facebook: @KnowAML


Instagram: @KnowAML


LinkedIn: Know AML



Ambassadors:


Agnieszka Wierzbowska – Co-Chair and Physician, University of Lodz, Poland


Amanda Shlosberg – Patient Advocate, CancerCare, United States of America


Claire Saxton – Patient Advocate, Cancer Support Community, United States of America


Lise-lott Eriksson – Patient Advocate, Blodcancerförbundet, Sweden


Rita Christensen – Patient Advocate, LyLe, Denmark


Stacey Koleszar – Patient Advocate, Leukemia & Lymphoma Society, United States of America


Tracey Iraca – Patient Advocate, MDS Foundation, United States of America


Zack Pemberton-Whiteley – Patient Advocate, Acute Leukemia Advocates Network, United Kingdom


Anna Mamwell – Patient, United Kingdom


Lizzie Dean – Patient, United Kingdom


Ralph Hills – Patient, United States of America


Charles Craddock – Physician, Queen Elizabeth Hospital Birmingham, United Kingdom


Gail J. Roboz – Physician, Weill Cornell Medicine, United States of America


Isolda Fernandez – Physician, FUNDALEU, Argentina


Erik Aerts – Specialist Nurse, HNHCP, Switzerland



Global Network:


Cancer Support Community, North America


Slovenian Lymphoma & Leukemia Patient Association, Slovenia


Philippines Acute Leukemia and Lymphoma Network, Philippines


Aplastic Anemia & Myelodysplasia Association of Canada, Canada


Thai Blood Cancer Supporter, Thailand


Fundación Colombiana de Leucemia y Linfoma, Colombia


Hematoonkologia, Poland


Associação de Apoio aos Doentes com Leucemia e Linfoma, Portugal


Leukaemia Care, United Kingdom


Flute of Light, Israel


Asociación Leucemia Mieloide de Argentina, Argentina


Aplastic Anemia & MDS International Foundation, North America


Lyle Foreningen, Denmark


Blodkreftforeningen, Norway


LHRM-MDS Patienten-interessen Gemeinschaft, Germany


Leukaemia & Blood Cancer New Zealand (LBC), New Zealand


Leukemia & Lymphoma Society, North America


Associazione Italiana Contro le Leucemie – Linfomi e Mieloma ONLUS, Italy


Cure Leukaemia, United Kingdom


Polska Koalicja Pacjentów Onkologicznych, Poland


Lymphoma Coalition, Global


Public Organization for Patients with Hematological Diseases, Russia


Patient Empowerment Network, North America


Hematon, Netherlands


MDS Foundation, North America


The White Cell Foundation, Nigeria


Taiwan Bone Marrow Transplantation Association, Taiwan


CancerCare, North America


Korea Blood Disease & Cancer Association (KBDCA), Korea


Asociația Română împotriva Leucemiei (ARIL), Romania


HealthTree Foundation, North America


Blodcancerförbundet, Sweden


Leukämiehilfe RHEIN-MAIN E.V., Germany


Blood Cancer Society Nepal, Nepal


Abrale, Brazil


HematologickyPacient, Slovakia


Association of Cancer Patients in Finland, Finland


Blood & Marrow Transplant Information Network, North America


RunX1 Research Program, Global


Portuguese Leukaemia and Lymphoma Association, Portugal


Life With Challenges, Macedonia


The Myeloma, Lymphoma & Leukaemia Foundation of Barbados, Barbados


K.E.F.I of Athens, Greece


Hrvatska udruga leukemija I limfomi (HULL), Croatia


Blood Cancer UK, United Kingdom


Kraujas, Lithuania


Irish Cancer Society, Ireland


Diagnóza Leukemie, Czech Republic


HEMA, North Macedonia


ACTL, United Kingdom



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